Creating a professional linkage platform in adult social care
Developing a prototype

Setting the conditions for success


1. Confirm there is no similar tool in your area 

It is critically important to first ascertain if there is a tool in your area (either in operation or under development) that performs the function of the Family Context tool

The North West London ICB’s ‘New Systems Group’ has been set up to ensure that new tools within the ICB geography do not duplicate existing tools. Check to see if a similar group is in operation in your area and engage with them to ensure that your project does not duplicate what is already in operation.

How the Family Context tool works

The tool gives professionals a joined-up view of who is already engaged with services under a thematic area (e.g. Children’s Social Care and Adult Social Care). To do this, agencies share professional involvement data with a central body, which matches this to create a single record for each individual. 

The Family Context tool is deployed on top of this combined dataset, detailing the services that an individual is presently engaged with. This enables efficiency through reduction in the time spent by practitioners ‘calling around’ (phoning services to understand which ones are involved with an individual’s care provision) and better coordination of care between services.

You can access a demo of the children’s social care tool with sample data here. As this is a wireframe built to demonstrate functionality, you do not need a username or password. Click on the green boxes to go from page to page. 

 

Important note

After transitioning from Commissioning Care Groups to Integrated Care Boards in 2022, ICBs were required to develop a Shared Care Record. These records bring together information from various sources involved in an individual’s care, including medical information, service involvement and care plans. 

Development and deployment of these records varies by area (they might not be available to Social Care staff within Local Authorities or available as ‘read only’) so it is important to consider the stage of deployment of your local Shared Care Record, what information it holds, and who has access to this information when deciding whether the Family Context tool is appropriate for your area. 

2. Establish a project plan with distinct phases

We recommend that you define the different phases of work, with clear outputs for each, so you can easily move from one phase of the work to the next and effectively track progress.

For our project, we followed four distinct phases:

  1. Inception phase: Set up the joint team, gathered existing research and knowledge, and defined and prioritised hypotheses to test.
  2. Targeted discovery phase: Conducted user research with practitioners identified as potential beneficiaries of the tool to refine our understanding of their needs and carried out an initial technical feasibility assessment for deployment of the tool.
  3. Prototyping phase: Refined and deployed our prototype and prioritised datasets from scoping. In this phase, we sought to leverage reusable components from the existing Family Context tool.
  4. Refining and roadmapping phase: Produced outputs to help other agencies implement the tool (including this toolkit) and created recommendations for scaling and product development beyond the prototype.

3. Set strong project governance and project management principles 

We delivered our project using an agile project management framework. This involved regular ‘ceremonies’ to ensure timely delivery of project outputs and opportunities for regular feedback to adjust the project approach. We also set up an overarching governance group to ‘check and challenge’ project delivery, and convened specific working groups around thematic areas.

Regular involvement of representatives from the London Office of Technology and Innovation (LOTI) across all groups was incredibly helpful in terms of keeping them informed about project progress and ensuring that any changes to project scope and delivery could be effectively managed. 

A breakdown of our ceremonies, the individuals involved, and the frequency of meetings can be found below:

  • Standup: This took place once a week for 30 minutes to discuss key outputs for that ‘sprint’ (a two week package of work), outline progress, and discuss and unblock any barriers to progress.
  • Sprint planning: This took place every two weeks for an hour and involved the core delivery team and individuals relevant to that phase of work (e.g. in development-heavy phases, the technical leads were encouraged to join). During these sessions, team members agreed a plan for what was in / out of scope for the following two weeks, using Trello (a digital project management tool) to support planning.  
  • Information Governance (IG) Working Group: This took place every two weeks after the targeted discovery phase and involved IG leads from the key partner organisations. It provided opportunities to discuss suggested amendments to emerging IG documents, such as Data Protection Impact Assessments (DPIAs), Data Sharing Agreements (DSAs)/Information Sharing Agreements (ISAs), and privacy notices. This was particularly helpful because the project involved so much information governance work.
  • Technical Working Group: This took place on a two-weekly basis during the prototyping phase and involved key technical leads. The group also used agile principles, breaking down the development and deployment of the tool into manageable ‘sprints’.
  • Project Governance Group: This took place on a monthly basis and provided key strategic leaders from across the partnership to ‘check and challenge’.
Top tips

  • Having the Information Governance (IG) Working Group as a standing meeting in stakeholder’s calendars meant the time was protected. The meeting could be easily ‘stood up’ and ‘stood down’ depending on project requirements and was described as an effective way of managing IG on a complex project.
  • Participants in the Project Governance Group should be sufficiently senior to be able to influence activities, set direction within their organisations, and help the project team to  unblock challenges. 

4. Secure internal support from key stakeholders

It is important to secure buy-in for the implementation of the tool before the project launches and to carefully manage this over the duration of the project. The suggestions about governance (see step 3) will support this, as will consideration and involvement of the relevant service areas.

Deploying the Family Context tool requires successful engagement and coordination between multiple services within the local authority, including (but not limited to) frontline services, information governance, IT and digital. 

We recommend that you identify early on who the service leads are for this area and meet with them to demo the tool and outline the potential benefits of engaging and sharing information. There may be service-specific boards that you need to present to – having a slide deck outlining the benefits will be helpful

IT teams often have limited resources to support the deployment of a new tool so it is also useful to:

  • Factor time early on in your project plan to complete and deliver High Level Design documentation and get approval at IT new systems boards (or equivalent)
  • Consider allocating part of your budget to fund internal IT recharges
  • Bring relevant IT leads (e.g. information governance and security) into your Technical Working Group

5. Identify and agree your lawful basis and legal gateways for processing data

Under the GDPR, you must have an identified lawful basis for processing personal information. Spend time with your partners outlining which lawful basis you will use and, if you choose legal obligation, get a good understanding of which pieces of legislation you are using to establish ‘legal gateways’ for processing personal data. Data protection leads within your own organisation and partner organisations can help you to identify these.

Top tip

LOTI has a dedicated Pan-London Information Governance lead with a wealth of experience who can offer advice, guidance and support. They can be reached at contact@loti.london

You should identify early on who has the sufficient seniority within organisations to sign off on information being shared both within your own organisation and with external partners. This will likely be a head of service or equivalent getting their sign-off early on is essential to move things along. 

6. Create information governance documentation

You will need to create several documents to allow for the sharing of information to support the tool. 

Data Protection Impact Assessment (DPIA)

This ‘living’ document will set out the details of the proposed data sharing and assess the risks – it will evolve over the duration of your project. 

All partners who will be involved in sharing data will need to sign up to the DPIA and, depending on the preferences of information governance leads, you may need to complete multiple DPIAs in different organisational templates. 

For simplicity, try to agree using a single DPIA with relevant governance leads within an appropriate forum (e.g. the IG Working Group) as this will prevent duplication of effort.

Top tip

There are various online tools available to support you with completing DPIAs, such as the Dapian tool, which was co-funded by LOTI.

Data Sharing Agreements (DSAs) (also called Information Sharing Agreements or ISAs)

A DSA or ISA is different to a DPIA as it is a static agreement between two organisations entering into a data sharing relationship. It will typically include:

  • What data will be shared
  • How it will be shared
  • Where it will be stored
  • Who will be able to access it 
  • Steps that will be taken if there is a data breach
  • How the data will be deleted when it is no longer needed 

Amendments to privacy notices

As the data sharing will likely constitute a new use of data, data subjects will need to be informed of this change. Privacy notices should therefore be reviewed by the project team and data protection lead to ensure they reflect this new sharing.

7. Share strong drafts with partners as early as possible

Information governance practitioners are incredibly busy and have to review many lengthy documents for large organisations. While it is critical to engage partners as early as possible, providing incomplete or draft documents is likely to increase the chances of delay. Get your documents to a significant level of completion before sharing them.

Top tip

Consider engaging recognised experts to help you complete these documents. LOTI’s Pan-London Information Governance Lead supported us in the creation of our IG documentation. Their contribution, reputation and standing gave assurances to IG partners that we had done a thorough job. 

Skip to content

Join the LOTI conversation


Sign up for our monthly newsletter to get the latest news and updates